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Swallowing and Parkinson's

Swallowing and Parkinson’s

Tuesday, 21 November 2017

Difficulty swallowing, called dysphagia, can happen at any stage of Parkinson disease. Signs and symptoms can range from mild to severe and may include: difficulty swallowing certain foods or liquids, coughing or throat clearing during or after eating/drinking, and feeling…

Giving Tuesday - Parkinson' disease

Tuesday 28th November is #GivingTuesday

Monday, 20 November 2017

Tuesday 28 November is Giving Tuesday. #GivingTuesday a global movement to encourage individuals and communities around the world to support charities.  Please help us raise funds to increase Australian research into Parkinson’s by making a donation on our website. We…

Todd Sherer

Big things are happening in Parkinson’s research.

Monday, 20 November 2017

CEO Todd Sherer from The Michael J. Fox Foundation shares an update on Parkinson’s research and how Patient Power is driving research forward. A handful of symptomatic therapies are moving toward patients and multiple disease-modifying medicines are in clinical trials….

Our Hero Stephanie takes on the Noosa Triathlon

Friday, 17 November 2017

Our hero this week is Stephanie who took on the Noosa Triathlon to raise funds for a cure.   Seeing the impact that Parkinson’s has on her Dad inspired Stephanie to get involved and raise awareness and funds to provide a better quality…

Weight Loss with Parkinson's

Weight Loss with Parkinson’s

Tuesday, 14 November 2017

Weight loss in Parkinson’s is common, but it’s usually mild or, at most, moderate. Changes can occur at any time with Parkinson’s disease (PD), but maybe more likely in later phases. It’s important to recognise and address weight loss because…

Managing your ‘Off’ Time in Parkinson’s Disease

Monday, 13 November 2017

Motor fluctuations are “off” times, when medication — namely levodopa (the “gold standard” treatment for Parkinson’s) — is not working optimally and Parkinson’s symptoms (motor and/or non-motor) return. “Off” periods are more common as the disease progresses and people take medication for…

Soania Mathur is a family physician practicing outside of Toronto. Soania is a member of the Michael J. Fox Foundation Patient Council, which serves to advise the Foundation on strategies to best convey patient priorities to the research community and content for patient education and outreach. This content originally appeared on Soania's blog, Designing a Cure. To my newly diagnosed self. I just wanted you to know that you will eventually have three beautiful daughters and even though you worry about how you are going to raise them while facing a disease that will challenge you every day, you will make it through joyfully. Your children will give you strength and through their experience and your example, they will learn empathy, compassion and perseverance. Parkinson’s may make some of the physical aspects of parenting a little harder but some day your daughters will look at you and say “We want to be just like you.”… To my newly diagnosed self. I just wanted you to know that after 12 years of a busy and successful career as a physician, you will have to retire early. But I also want you to know that your patients and co-workers will be nothing but supportive of your decision. And that Parkinson’s will open up a whole new world and lead you to a more fulfilling path of educating and inspiring patients to live well with this challenge while advocating for better treatments and that much needed cure. Parkinson’s may take away one career, but it will give you the opportunity to do your life’s true calling… To my newly diagnosed self. I just wanted you to know that your marriage will grow stronger not only despite of but because of this disease. The man you recently married will turn out to be your biggest support, your rock. Parkinson’s has taught you both not to take each other for granted, that life can change at the blink of an eye and the most important thing is the relationship you have. That one day you will ask your husband what he would have said to that naïve girl he met over twenty years ago had he known what the future held and his simple reply would be “What time should I pick you up?” To my newly diagnosed self. You may not feel it at the moment but Parkinson’s will be your ultimate blessing, not the curse you see it as. That facing this challenge will teach you humility, empathy and strength. That it will force you to live in the moment, to take nothing for granted. That it will not defeat you as you may now believe, but instead be the very element that causes you to thrive. To my newly diagnosed self. No one really knows what life will bring. At some point you have to abandon your fear of the future and begin living your present. To my newly diagnosed self. Stop living in such angst. I know what the future holds for you and you are ready to face it head on.

A Letter to my Newly Diagnosed Self…

Monday, 6 November 2017

Soania Mathur is a family physician practicing outside of Toronto. Soania is a member of the Michael J. Fox Foundation Patient Council, which serves to advise the Foundation on strategies to best convey patient priorities to the research community and content for…

Parkinson's Therapeutics Conference

Parkinson’s Research Conference Spotlights Field-wide Advances

Monday, 6 November 2017

On October 30, more than 300 leaders in Parkinson’s disease (PD) research and business development gathered in NYC for The Michael J. Fox Foundation’s 11th Annual Parkinson’s Disease Therapeutics Conference. The event featured the latest in Parkinson’s drug development and…

Donate your Share Parcels to Parkinson's research

Did you know you can donate your shares to Shake It Up?

Wednesday, 1 November 2017

ShareGift Australia provides a platform to increase giving by shareholders to the Australian community, in a sustainable and transparent manner by converting share parcels to cash and donating the proceeds to charity. ShareGift works with their stockbroker partners to facilitate…

According to a recent survey conducted by The Michael J. Fox Foundation, only half of U.S. adults are aware that reduced sense of smell can be a precursor to brain disease.

Podcast: Sniff Test for Parkinson’s Disease

Sunday, 22 October 2017

Listen to this Podcast Lack of objective tests to diagnose Parkinson’s disease (PD) challenges drug development and patient care. While scientists are looking to pinpoint PD earlier through skin and spinal fluid, there is also promising research on some less…