Online Clinical Trials

Observational trials are as the name suggests – researchers follow a group of volunteers, monitoring various aspects of their health. In Parkinson’s disease, this type of data can allow for a deeper understanding of the disease. These factors contribute to its development and the course of the disease for example, all of which help in developing new treatments.

Due to the COVID-19 pandemic, many face to face clinical trials are not currently possible, but technology has allowed research to continue from the comfort of your home. Some studies may involve completing a survey or series of surveys over time, others may involve a video call to discuss your experience.

Today, 80 percent of trials fail to recruit enough volunteers within planned timelines.

Register to Get Involved

Improving Parkinson's trials neuroprotective therapies using a Delphi process

Our Partners at Cure Parkinson’s Trust are funding a study looking at the design of clinical trials

Dr Marie-Louise Zeissler and the research team at Plymouth University (UK) are trying to understand the best way to test new treatments that may stop or slow the progression of Parkinson’s.

The aim of the research is to reach an agreement on the design of clinical trials for neuroprotective therapies, hopefully speeding up the process for finding a cure.

What is involved?

Receiving 5 online questionnaires over the next 6 months.  Each questionnaire should take approximately 3o minutes to complete.

For more information, please read the participant information sheet.

Who do the researchers need?

30 people with Parkinson’s and 30 partners of people with Parkinson’s.

Interested in taking part?

Please register your interest on the here

If you have further questions or problems with the website, please contact Marie-Louise via email before 15th of Aug 2020.

 

Exploring experiences of sex and relationships for people with young-onset Parkinson’s disease.

Monash University are seeking participants who are able to read and understand English in order to take part in an interview via video conferencing such as zoom or skype, or by telephone. Alternatively, you might wish to participate via an email interview.

We hope to understand the effects of young-onset Parkinson’s disease on your sexual wellbeing and relationships.

  • Participants will be asked to participate in an interview lasting approximately 60 minutes.
  • Your participation is fully voluntary
  • You can nominate a preferable time and location to participate in your interview.
  • Participants will receive a $30 Coles-Myer or Woolworths gift card in recognition of their time for participating in the study.

Are you aged between 18-60 and do you live with young-onset Parkinson’s disease?

To participate or inquire about the study, please contact:

Email Lewis Johnstone  or phone on 0492 859 544

Email Narelle Warren or phone on 03 9903 4046

Other Research Trial Options

Shake It Up Funded Trials

Shake It Up Australia Foundation is currently funding research projects which require volunteers.  Learn about the trials you can participate in to help find better treatments and ultimately a cure for Parkinson’s.

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Fox Trial Finder

When you participate in research, you give something money can’t buy. Fox Trial Finder opens the door to your opportunity to make a priceless contribution in the search for a cure.

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Fox Insight

The future of Parkinson’s research is in powerful hands. Yours.
Fox Insight is an online clinical study where people with Parkinson’s disease and their loved ones share information that could transform the search for better treatments. You in?

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