Living with Parkinson's

Weight Loss with Parkinson's

Weight Loss with Parkinson’s

Tuesday, 14 November 2017

Weight loss in Parkinson’s is common, but it’s usually mild or, at most, moderate. Changes can occur at any time with Parkinson’s disease (PD), but maybe more likely in later phases. It’s important to recognise and address weight loss because…

Soania Mathur is a family physician practicing outside of Toronto. Soania is a member of the Michael J. Fox Foundation Patient Council, which serves to advise the Foundation on strategies to best convey patient priorities to the research community and content for patient education and outreach. This content originally appeared on Soania's blog, Designing a Cure. To my newly diagnosed self. I just wanted you to know that you will eventually have three beautiful daughters and even though you worry about how you are going to raise them while facing a disease that will challenge you every day, you will make it through joyfully. Your children will give you strength and through their experience and your example, they will learn empathy, compassion and perseverance. Parkinson’s may make some of the physical aspects of parenting a little harder but some day your daughters will look at you and say “We want to be just like you.”… To my newly diagnosed self. I just wanted you to know that after 12 years of a busy and successful career as a physician, you will have to retire early. But I also want you to know that your patients and co-workers will be nothing but supportive of your decision. And that Parkinson’s will open up a whole new world and lead you to a more fulfilling path of educating and inspiring patients to live well with this challenge while advocating for better treatments and that much needed cure. Parkinson’s may take away one career, but it will give you the opportunity to do your life’s true calling… To my newly diagnosed self. I just wanted you to know that your marriage will grow stronger not only despite of but because of this disease. The man you recently married will turn out to be your biggest support, your rock. Parkinson’s has taught you both not to take each other for granted, that life can change at the blink of an eye and the most important thing is the relationship you have. That one day you will ask your husband what he would have said to that naïve girl he met over twenty years ago had he known what the future held and his simple reply would be “What time should I pick you up?” To my newly diagnosed self. You may not feel it at the moment but Parkinson’s will be your ultimate blessing, not the curse you see it as. That facing this challenge will teach you humility, empathy and strength. That it will force you to live in the moment, to take nothing for granted. That it will not defeat you as you may now believe, but instead be the very element that causes you to thrive. To my newly diagnosed self. No one really knows what life will bring. At some point you have to abandon your fear of the future and begin living your present. To my newly diagnosed self. Stop living in such angst. I know what the future holds for you and you are ready to face it head on.

A Letter to my Newly Diagnosed Self…

Monday, 6 November 2017

Soania Mathur is a family physician practicing outside of Toronto. Soania is a member of the Michael J. Fox Foundation Patient Council, which serves to advise the Foundation on strategies to best convey patient priorities to the research community and content for…

Living alone with parkinson's

7 Tips for Living Alone with Parkinson’s

Tuesday, 12 September 2017

After a Parkinson’s disease diagnosis, adjustments and renovations both small and large can help make your home more comfortable — and safer — for yourself or a loved one with Parkinson’s disease, especially if gait, balance and fatigue symptoms are…

Accupuncture and Parkinson's

ACUPUNCTURE AND PARKINSON’S

Tuesday, 8 August 2017

What Is Acupuncture? Acupuncture is a form of traditional Chinese medicine that has been around for thousands of years. It involves the insertion of tiny needles into the skin at various places of the body (depending on what symptoms are…

Urinary Problems in Parkinson’s Disease

Thursday, 18 May 2017

Urinary function is governed by the body’s autonomic nervous system, which regulates automatic body functions such as bowel and bladder control and blood pressure, among others. In Parkinson’s, each of those systems can be thrown off balance, but urinary problems…

Heatwave Australia, tips for staying cool

5 Tips for Coping with the Heat

Thursday, 12 January 2017

With temperatures soaring across the country, here are our top tips for keeping cool. Keep hydrated: Make sure you drink plenty of water and fruit juice and avoid tea, coffee and alcohol. Stay indoors: Try to avoid any strenuous activity….

Yoga with Parkinson's

Yoga for Parkinson’s: Research suggests many benefits

Tuesday, 10 January 2017

Yoga continues to rise in popularity and is cited as a favourite non-medical therapy by many living with Parkinson’s disease. Getting started can seem challenging, as it is often portrayed with pretzel-like contortions and trendy #yogaselfies on social media. But,…

Shake It Up and Share – with Glenda

Friday, 15 July 2016

This week’s Shake It Up and Share is a follow up story from Glenda – a wonderfully inspiring member of our community who has now written a book about her Parkinson’s journey. 1. How old were you when you were…

5 Common Myths about Parkinson’s Caregiving

Tuesday, 5 July 2016

There’s a saying in the medical community that if you’ve seen one person with Parkinson’s, you’ve seen… one person with Parkinson’s. The same can be said for PD caregivers. Experiences with the disease vary widely, and symptoms change over time. That…

Products to assist people with Parkinson’s Disease

Monday, 1 February 2016

Update: In January 2016, we shared a story from The Michael J. Fox Foundation for Parkinson’s Research (MJFF) covering the progress of a special glove that uses a gyroscope to cancel out tremor. It’s still being tested and adjusted, but…

Apathy and Parkinson’s Disease

Thursday, 14 January 2016

Finding it hard to get-up-and-go, or you’re simply not interested? You may be experiencing apathy. Apathy Is a Non-motor Symptom of Parkinson’s Disease Apathy causes a general lack of motivation and interest, as well as a dampening of emotional expression….

10 Lesser-Known Parkinson’s Disease Symptoms

Monday, 31 August 2015

Before you or a loved one received a Parkinson’s disease diagnosis, you may have only been familiar with the tremor symptom. Parkinson’s is different for everyone, and includes both motor and non-motor symptoms. Even after diagnosis, many are not aware…

7 Ways the Arts can help people living with Parkinson’s

Tuesday, 9 December 2014

Painting, playing an instrument or simply dancing in your living room are all relaxing ways to express yourself. For many people with Parkinson’s, these hobbies can also help manage certain symptoms. Our community shared how their favorites, from beading jewellery…