living with PD

Living with Parkinson’s

Weight Loss with Parkinson's

Weight Loss with Parkinson’s

Tuesday, 14 November 2017

Weight loss in Parkinson’s is common, but it’s usually mild or, at most, moderate. Changes can occur at any time with Parkinson’s disease (PD), but maybe more likely in later phases. It’s important to recognise and address weight loss because…

Soania Mathur is a family physician practicing outside of Toronto. Soania is a member of the Michael J. Fox Foundation Patient Council, which serves to advise the Foundation on strategies to best convey patient priorities to the research community and content for patient education and outreach. This content originally appeared on Soania's blog, Designing a Cure. To my newly diagnosed self. I just wanted you to know that you will eventually have three beautiful daughters and even though you worry about how you are going to raise them while facing a disease that will challenge you every day, you will make it through joyfully. Your children will give you strength and through their experience and your example, they will learn empathy, compassion and perseverance. Parkinson’s may make some of the physical aspects of parenting a little harder but some day your daughters will look at you and say “We want to be just like you.”… To my newly diagnosed self. I just wanted you to know that after 12 years of a busy and successful career as a physician, you will have to retire early. But I also want you to know that your patients and co-workers will be nothing but supportive of your decision. And that Parkinson’s will open up a whole new world and lead you to a more fulfilling path of educating and inspiring patients to live well with this challenge while advocating for better treatments and that much needed cure. Parkinson’s may take away one career, but it will give you the opportunity to do your life’s true calling… To my newly diagnosed self. I just wanted you to know that your marriage will grow stronger not only despite of but because of this disease. The man you recently married will turn out to be your biggest support, your rock. Parkinson’s has taught you both not to take each other for granted, that life can change at the blink of an eye and the most important thing is the relationship you have. That one day you will ask your husband what he would have said to that naïve girl he met over twenty years ago had he known what the future held and his simple reply would be “What time should I pick you up?” To my newly diagnosed self. You may not feel it at the moment but Parkinson’s will be your ultimate blessing, not the curse you see it as. That facing this challenge will teach you humility, empathy and strength. That it will force you to live in the moment, to take nothing for granted. That it will not defeat you as you may now believe, but instead be the very element that causes you to thrive. To my newly diagnosed self. No one really knows what life will bring. At some point you have to abandon your fear of the future and begin living your present. To my newly diagnosed self. Stop living in such angst. I know what the future holds for you and you are ready to face it head on.

A Letter to my Newly Diagnosed Self…

Monday, 6 November 2017

Soania Mathur is a family physician practicing outside of Toronto. Soania is a member of the Michael J. Fox Foundation Patient Council, which serves to advise the Foundation on strategies to best convey patient priorities to the research community and content for…

Living alone with parkinson's

7 Tips for Living Alone with Parkinson’s

Tuesday, 12 September 2017

After a Parkinson’s disease diagnosis, adjustments and renovations both small and large can help make your home more comfortable — and safer — for yourself or a loved one with Parkinson’s disease, especially if gait, balance and fatigue symptoms are…

Vision and Parkinson’s Disease

Monday, 26 June 2017

As people with Parkinson’s know all too well, the disease can cause many more symptoms than those that are noticeable from the outside. Some of the lesser recognised ones — even among doctors — involve the eyes and visual system….

Heatwave Australia, tips for staying cool

5 Tips for Coping with the Heat

Thursday, 12 January 2017

With temperatures soaring across the country, here are our top tips for keeping cool. Keep hydrated: Make sure you drink plenty of water and fruit juice and avoid tea, coffee and alcohol. Stay indoors: Try to avoid any strenuous activity….

Cognitive Impairment

Cognitive Changes in Parkinson’s Disease

Monday, 17 October 2016

Cognitive impairment, disturbance of memory, thinking and/or language abilities, is a non-motor symptom that can be associated with Parkinson’s. Cognitive disturbances can arise at any time in the course of Parkinson’s disease (PD) and vary widely in severity. Some people…

Shake It Up and Share – with Glenda

Friday, 15 July 2016

This week’s Shake It Up and Share is a follow up story from Glenda – a wonderfully inspiring member of our community who has now written a book about her Parkinson’s journey. 1. How old were you when you were…

5 Common Myths about Parkinson’s Caregiving

Tuesday, 5 July 2016

There’s a saying in the medical community that if you’ve seen one person with Parkinson’s, you’ve seen… one person with Parkinson’s. The same can be said for PD caregivers. Experiences with the disease vary widely, and symptoms change over time. That…

Yoga and Meditation May Help Prevent Mental Decline

Tuesday, 28 June 2016

Studies suggest that people who stay active have a lower risk of developing dementia. If you’re not able to engage in cardio activities like running, you may wonder how important vigorous exercise is to reaping those mental benefits. A new study…

Shake It Up and Share – with Chontelle

Friday, 3 June 2016

Chontelle recently lost her father who lived with Parkinson’s. Later this year she and her family are embarking on a road trip around Australia and they will be using the opportunity to raise awareness about Parkinson’s, Shake It Up and…

How Do You Define What It Means to Be a Caregiver?

Thursday, 21 April 2016

Just like Parkinson’s disease itself, Parkinson’s caregiving looks and feels different for everyone. Some loved ones don’t identify with the caregiver label at all. Others embrace it and find comfort in caregiver support groups. For some, caregiving is a full-time…

2015 HSC student Emily Andrews with her award-winning utility board. Picture: Braden Fastier

Emily’s design a cut above the rest

Thursday, 14 April 2016

Local Sydney HSC student Emily made the decision to design and produce a chopping board that would make preparing food so much easier. After much research – including consulting neurologists, Shake It Up Founder Clyde Campbell and even asking her…