What drives your commitment to a cure for Parkinson’s?
The drive to help find a cure for Parkinsons has been my family’s own journey and pain of watching our wonderful Dad and Husband decline with the disease. It is, as I say, ‘the heartbreak of our lives’ as you slowly watch the very simple things we take for granted like walking, eating, talking, being taken away and the one who was once strong and capable of anything struggle with those simple things…
The disease slowly progresses then rapidly declines. Dad was officially diagnosed with Parkinson’s Plus Syndrome in 2019, but has been suffering the disease for much longer, but was never diagnosed and often seen as a ‘mystery case’. The treatments for Parkinson’s are not a ‘one size fits all’ and many hindered rather than helped Dad.
We would like to see more medical research to work on prevention, diagnosis, disease management and quality of life. We hope that awareness and funds help to put more focus on these areas to help people with Parkinson’s and the families that love them.