Did you know that pain affects up to 85 percent of people living with Parkinson’s? And can be one of the most troubling non-motor symptoms in early-stage PD, becoming a leading driver of reduced quality of life? However, despite the prevalence and burden of pain in PD, it remains an often under-recognised and under-treated symptom.
A new study being conducted as part of a larger PhD research project being undertaken at the Rosemary Bryant AO Research Centre, University of South Australia, is investigating the characteristics and treatment of pain in Parkinson’s. Read on to find out more about the study and how people living with Parkinson’s can get involved.
What is the APPS?
This information gathered via this study will enable researchers to develop:
- A comprehensive profile of pain experienced by people with Parkinson’s.
- A deeper understanding of the needs of people with Parkinson’s in the management of pain symptoms.
- A set of patient centred recommendations that may be used to advance the provision of pain care services.
Who can participate?
(a) have been diagnosed with Parkinson’s
(b) have experienced pain symptoms in the past month;
(c) are an Australian citizen or permanent resident currently living in Australia; and
(d) are aged 18 years or older.
What does participation involve?
Participation involves completing an online survey. The survey includes questions about the nature of participants’ pain symptoms and the steps they have taken in managing their pain.
Funding and Ethics
This study is part of a larger PhD research project being undertaken at the Rosemary Bryant AO Research Centre, University of South Australia and is funded through an Australian Government Research Training Program Scholarship and The Hospital Research Foundation Group – Parkinson’s.
This study has been approved by the University of South Australia’s Human Research Ethics Committee (Ethics Protocol 205671).
All information collected for the study remains confidential in accordance with The
Australian National Health and Medical Research Council (NHMRC) Human
Research guidelines and the Australian Privacy Act.
Who to contact for more information?
If you want any further information about this study or if you have any problems which may be related to your involvement in the study, please contact:
Name: Anthony Mezzini
Position: Principal Investigator
Telephone: +61 427 820 256