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Have Your Say: Help Shape the Future of Parkinson’s Care in Australia

 

As part of the National Parkinson’s Action Plan, the National Parkinson’s Alliance (NPA) has launched a first-ever nationwide survey to better understand the real-world experience of living with, caring for, or supporting someone with Parkinson’s. Whether you’re living with Parkinson’s, a family member, carer, health professional, or researcher — your insights will help shape national priorities and inform the future of care and support in Australia.

Why This Matters

For the first time, Parkinson’s Australia-wide will have a united action plan — but it won’t be meaningful without your input. This is your chance to influence lasting change.

 

Your lived experience will help ensure the plan reflects the most urgent needs of the community — from diagnosis through to daily life, healthcare access, research, mental health, and more.

 

Who Should Complete the Survey?

  • People living with Parkinson’s

  • Family members and loved ones

  • Unpaid carers and supporters

  • GPs and neurologists

  • Allied health professionals

  • Parkinson’s researchers and advocates

What Happens When You Take the Survey?

  • The survey only takes around 15 minutes.

  • At the end, you’ll be invited to register for optional online workshops or one-on-one consultations.

  • Your feedback will be used to inform a robust, inclusive National Parkinson’s Action Plan — built by and for the community.

Survey Now Live — Have Your Say

Click the button below to complete the survey now and be part of this historic moment for Parkinson’s in Australia:

Start the survey

 

Need Support?

If you have any questions or need assistance completing the survey, please call the NPA Support Line on 1800 644 189.

 

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