WEHI (The Walter and Eliza Hall Institute of Medical Research), is establishing a Parkinson’s Disease Research Centre of Excellence in collaborative and patient-centric medical research. To guide their research, they want to hear from a range of people in Australia who have been diagnosed with Parkinson’s disease, as well as other Parkinsonian syndromes.
WEHI aims to create a patient-focused resource hub for all people recently diagnosed to provide access to the most updated information on research breakthroughs, clinical studies, clinical trials and treatment options. They also aim to offer resources and linkage to community-based services that can provide further support and resources to individuals following diagnosis. This resource hub will also connect people with WEHI’s collaborative, multi-institute research program.
The vision at WEHI is to gain greater insight and understanding about how biological changes in the brain contribute to the onset and progression of Parkinson’s disease. Importantly, the research being undertaken at WEHI is contributing to worldwide efforts to discover new diagnostic tools, treatments and ultimately a cure for Parkinson’s disease.
We greatly appreciate your contribution to WEHI’s Parkinson’s disease research program by completing this 12 question survey. It should take approximately 5 – 7 minutes to complete.
By completing this survey, you’re providing informed consent to your answers being collected and used for research purposes within the Parkinson’s Disease Research Centre at WEHI. All information we collect from you is anonymous and cannot be used to identify you or be linked to any of your personal information. Your survey responses will be stored securely on password protected computers at WEHI accessed by approved researchers indefinitely for use in Parkinson’s disease related studies. This project has been reviewed and approved by the Human Research Ethics Committee at WEHI.
If you have any questions about this survey, how WEHI handles data or the Parkinson’s Disease Research Centre, please contact Dr Tali Lang (email@example.com).