The Young Onset Parkinson’s Exchange (YOP-X) Project
Thursday, 2nd July 2020

Have you been diagnosed with Young Onset Parkinson’s?

Parkinson’s South Australia are championing The Young Onset Parkinson’s Exchange (YOP-X) Project. It is in the development stages of creating an innovative App and other online resources to act as an information portal for those living with young onset Parkinson’s. Additionally, educational tools are being developed for NDIS contracted providers and other health professionals, to assist them to meet the needs of people living with young onset Parkinson’s, by raising awareness of the symptoms, issues and the treatments available that can enhance participation in family, work, social and recreational life.

As part of the project, Parkinson’s SA have launched an online platform for people with young onset Parkinson’s to upload video selfies for use in the development of our educational tools. You can contribute too.

Additionally, they have developed a range of national surveys specifically for people with young onset Parkinson’s.

 

The first survey is to capture the workforce experiences of people with young onset Parkinson’s, who often face a reduced capacity to work, or in some cases leave the workforce altogether. Research indicates that factors other than onset age and the duration of having young onset Parkinson’s influence loss of employment, and therefore developing targeted strategies could support people with young onset Parkinson’s to remain in employment for longer.

Participate in the Workforce Survey for People With Young Onset Parkinson’s 

There is also a relationship survey and partner survey. Some people are doing Parkinson’s solo, some are in long-term relationships, and some met their partner following diagnosis. Changes in relationship responses and functioning that come with young onset Parkinson’s can be as a result of the condition itself, as well as the affects of medication or the impact of other factors such as fatigue or changes in partner roles.

Participate in the Relationship Survey for People With Young Onset Parkinson’s 

Participate in the Partner Survey

For more information on the Young Onset Parkinson’s Exchange Project, or to find out how you can be involved, please contact Katie at Katie@parkinsonssa.org.au

 

Young Onset Parkinson's Project

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