In this Edition: Parkinson’s Research, Michael J. Fox shares his 20 Year Journey with Parkinson’s, Pause 4 Parkinson’s Corporate Sponsorship Packages and more….
Dear Shake It Up Supporter,
Earlier this month I spoke at the 49th annual Inner Wheel Australia Conference in my home town of Lismore. It is always great to re-connect with my local community and to be able to share our research with people living with Parkinson’s and their loved ones. We are also very grateful for the donation we received from Inner Wheel to help us with our ongoing research commitments.
Have you registered for the Fox Insight research study by our partners at The Michael J. Fox Foundation? This is an online clinical study that empowers people with and without Parkinson’s to partner with researchers and accelerate the development of breakthrough treatments. Volunteers complete online questionnaires, providing researchers with valuable insights that can speed research. The initial survey takes about 20 minutes to complete and you will be emailed for a quarterly update. The Shake It Up team and I are excited to be participating in this study and I encourage everyone to share with your family and friends and support this important initiative. You can find out how to register later in this newsletter.
I would also like to highlight and thank one of our Heroes this month, Clare who celebrated her 70th birthday recently. Clare lives with Parkinson’s and invited her friends and family from Australia and New Zealand to celebrate her milestone birthday with her at a special dinner and asked guests to donate to Shake It Up in lieu of gifts. We received donations of $11,900 from Clare’s initiative which will be a great help in funding future research projects. Clare is motivated to find both a diagnostic test and a cure for Parkinson’s disease, in part to protect her children having to go through what her mother (who had PD) and Clare have both experienced. The power of the collective community is a great way of raising funds for research.
Finding a biomarker for Parkinson’s continues to be a high priority for researchers and we are pleased to share the first results from the Parkinson’s Progression Markers Initiative (PPMI) looking at protein levels in spinal fluid in a large, longitudinal cohort. This is a landmark study to find measures of Parkinson’s disease sponsored by The Michael J. Fox Foundation (MJFF) and funded in Australia by Shake It Up.
Thank you from all of us at Shake It Up for your continuing support.
Clyde and the Shake It Up team